Help shape the future of palliative and end-of-life care

Talking about death is something many people find difficult, but your views can make a genuine difference to how support is given at one of the most important moments in life.

The NHS in the North East and North Cumbria is asking people to share their views through a survey – 'Thoughts about Palliative and End of Life Care'. It asks how people how they feel about discussing death, dying and the care they would want for themselves or their loved ones. 

Palliative care supports people who are living with an illness that unfortunately cannot be cured. This illness may be cancer but is more likely to be a long term condition such as serious heart or lung disease where cure is not possible. It focuses on helping someone feel as comfortable as possible in body, mind and spirit, while also supporting their family and carers. End of life care is a form of palliative care given when a person is approaching the final stages of life. 

Dr Kathryn Hall, GP and clinical lead for palliative and end of life care for the NHS North East and North Cumbria Integrated Care Board (ICB) said: "Every person deserves compassionate and respectful care when they need it most. By taking a few minutes to complete this survey, you can help health and care services understand what matters to people, what feels challenging and what could be improved."

You can take part in the survey by clicking on the link below. The survey is completely anonymous and closes on 9th February. 

End of Life Care Survey

For further information, please contact nencicb.involve@nhs.net 

Organisations offering support

Thinking about death, dying, or end-of-life care can bring up difficult feelings. If you would like to talk to someone or find more information, the organisations below offer kind, confidential support.

Northern Cancer Alliance

Provides information, guidance, and resources to help people understand cancer care and support across the North East and North Cumbria.

Deciding Right – Northern Cancer Alliance

Helps people understand their choices about care, treatment, and planning for the future in a simple and supportive way.

Hospice UK

Offers information about hospice care and support for people at the end of life, their families, and carers.

Macmillan Cancer Support

Provides emotional, practical, and financial support for people affected by cancer, including help for families and carers.

Cruse Bereavement Support

Offers support, advice, and someone to talk to if you are dealing with grief or loss.

If you need support now, please reach out to someone you trust or contact one of the organisations above. You are not alone.

Looking for information about health and care?

Find advice and information to help you stay well and make decisions about your health and social care support.

Find advice and information